About Us
Our Programs
From support groups for teens, to physician-led webinars, medical education seminars, live Q&A with experts, an annual conference, and more, we provide programs to address: patient and family support services, physician and health professional education, public awareness, and advocacy & research.
SADS Foundation History
Founded on December 12, 1991, the SADS Foundation was formed by Dr. G. Michael Vincent and early family advocates Doris Toran Goldman and her surviving daughter, Nancy Toran Duitch. Together, they worked in collaboration with members of the inherited arrhythmia community and top global experts in genetic heart rhythm conditions to launch the Foundation and to initiate the work we continue today.
The SADS Team
Get to know the SADS Team, including the staff and our Board of Trustees. You can learn more here about the people who guide our work —who are always striving to help families with SADS conditions live and thrive.
Scientific Advisors
Get to know our Scientific Advisors, who are international medical experts – including doctors, researchers, and genetic counselors – working alongside the SADS Foundation to help improve diagnosis, treatment, and care for our community.
SADS News
Catch up on news from the SADS Foundation, including our latest newsletter and important updates for patients and families – like device recalls and new Drugs to Avoid for Long QT Syndrome
Newsroom
For members of the media: access press kit materials, including fact sheets, information on SADS conditions, and brochures. And learn more about the faces of SADS by reviewing published stories of SADS in the news.
Annual Reports & Financials
We are privileged to be supported by contributions from our families, friends, corporations, and foundations. Please feel free to read about our financials.
Board of Trustees
Learn more about our Board of Directors (which includes medical professionals and affected families) who help guide our decisions.
Mission & Values
The Sudden Arrhythmia Death Syndromes (SADS) Foundation exists to save the lives and support the families of children and young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities.
Diversity, Equity, Inclusion, and Belonging Statement
Our mission is to help everyone equally, without any discriminating factors – no matter what SADS condition impacts the individuals and families. Learn about our commitment to diversity, equity, inclusion and belonging at the SADS Foundation