by kymera_editor | Apr 19, 2022 | ARVC, Awareness, Heart Failure, Heart Transplant, Sports/Exercise
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis, at 13, Joelle got an ICD to help regulate the “electrical chaos” in her heart. Joelle had been a competitive figure...
by kymera_editor | Apr 14, 2022 | Advocacy, ARVC, Rare Disease, Research
How did you get involved with the SADS Foundation? I was at the University of Colorado in late 1999, finishing my residency in internal medicine. In my third year, I was a genetics and cell biology major. I designed a rotation where I could go out to genetic clinics –...
by kymera_editor | Nov 29, 2021 | AEDs, ARVC, Raising Awareness, SADS Kids, Uncategorized
Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...
by kymera_editor | Apr 20, 2020 | AEDs, ARVC, CPR, SADS Spotlight
Name: Rebecca Schmidling Age: 40 Which SADS condition do you have? ARVC When were you diagnosed? 2012 at age 32. How are you treated? (Beta blocker, ICD, etc.) ablation in 2014, sotalol and an ICD How/when were you diagnosed? I was 32 years old and about 6 weeks...
by kymera_editor | Apr 20, 2020 | ARVC, ICD, Parenting, SADS Spotlight
Name: Kerri Dyer Age: 38 years Which SADS condition do you have? ARVC When were you diagnosed? 2014 How are you treated? (Beta blocker, ICD, etc.) 2 different beta blockers and ICD fitted How/when were you diagnosed? Collapsed at home with pulse of 276 bpm,...
by kymera_editor | Sep 1, 2018 | ARVC, Sports/Exercise
Some positives & observations of now being a walker & not a runner: 1. When it’s 4:30 in the morning I don’t even know cause I’m still sleeping; 2. I don’t have to experience being 20 miles into a marathon feeling like hell & say, shoot, I still got...
