Mental Health and ARVC

Written by Kiersten Rock-Torcivia   “Mental health isn’t static; just like anything in life, there are highs and lows.” Mental Health. It’s a hot topic these days, on the tip of everyone’s tongue. But what does it look like when it comes to...

Jadale’s CPVT & SCA Story

When Jadale was nine, he experienced his very first symptom of CPVT – a terrifying episode in which he lost consciousness in the rain and had to drag himself across a parking lot to find help. Jadale is now a D2 athlete in shotput and discus at Roosevelt University in...

Kaveri’s Short QT Syndrome Story

Kaveri didn’t have any indication that something was wrong with her son’s heart – until he experienced Sudden Cardiac Arrest (SCA) during a band gig in 2024. Kaveri learned that her son has an extremely rare cardiac condition called Short QT Syndrome (SQTS). She’s...

Elliott’s Brugada Syndrome Story

Elliott was diagnosed with Brugada Syndrome in 2020. And he credits the discovery of this rare cardiac condition to an episode of “How I Met Your Mother.” In 2019, Elliott’s brother was diagnosed with a congenital heart condition after undergoing an EKG at work. “I...

John’s CPVT Story

John is a happy, compassionate, and bright 10-year-old boy who loves science and learning how things work – and who almost lost his life because of an undiagnosed heart condition called CPVT. “John’s very first symptom of a heart issue, as it is for many families with...

Martin’s LQTS Story

Martin – also known as Fast Heart Mart – was diagnosed with Long QT Syndrome (LQTS) at the age of 17 after six years of searching for answers. Now, he’s a professional musician who wants others with LQTS to know that this genetic diagnosis “doesn’t mean the end” – and...