Broken Hearts: Racing Against a Deadly Disorder

Thirty-nine. That’s how old I am. It’s also the age when my father died.  Losing my dad when I was just 11 years old has had a profound impact on me. Not only was I forced to navigate growing up without him, but I was also diagnosed with the same medical condition...

#ThisisBrugada: Shane’s Story

Shane was diagnosed with Brugada Syndrome in March of 2021 after ending up the E.R. for a stomach bug. He had an ICD installed two months later. “I had asked my doctor for some medicine for my stomach bug, which just wasn’t going away,” says Shane. “They did an EKG as...

Susan’s Heart Failure and Transplant Story

Susan’s first symptom of a heart problem was a Sudden Cardiac Arrest in her driveway as she was getting ready to leave for work in 2015. It took over three years to figure out what caused her Sudden Cardiac Arrest. “I was in a coma for four days after my SCA,” says...

Heart Month Stories: Ishani’s LQTS Story

A normal summer day at the pool turned into a rare genetic heart condition diagnosis for thirteen year old Ishani. After feeling dizzy, Ishani visited with her doctor, who said she probably had low blood sugar – and suggested she have an energy drink. Two days later,...