by sadsfoundation | Sep 20, 2023 | Blog
In October of 2022, Matthew was taking a dinner break during a World of Dance rehearsal in New York City when he experienced Sudden Cardiac Arrest (SCA). It was his first symptom of an underlying heart condition. A friend started CPR, and Matthew was shocked twice...
by sadsfoundation | Sep 19, 2023 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where you are today? For me, the discovery of Brugada Syndrome was not triggered by any symptoms. My mother passed away from an unknown cardiac event. I knew she’d gone to the cardiologist many...
by sadsfoundation | Sep 18, 2023 | Blog
Melanie was diagnosed with ARVC (Arrhythmogenic Right Ventricular Cardiomyopathy) after experiencing ventricular tachycardia – a fast, irregular, and dangerous heart rhythm – in 2021. But that was just the beginning of Melanie’s heart journey. Melanie experienced...
by sadsfoundation | Sep 12, 2023 | Blog
Every morning I am greeted with the same bittersweet reality. Bitter is just a taste of the eternal emotion of losing a child. Sweet is the ever-present gratefulness that one of our children came back to life after being pronounced dead. We choose to share our...
by sadsfoundation | Sep 11, 2023 | Blog
I have a strong family history of relatives experiencing “heart attacks” (or perhaps cardiac arrests) and dying at a young age. When I was a kid, I thought everyone eventually died of these “heart attacks”. In my family, the deaths were instant, and happened while...
by Erinsads | Sep 6, 2023 | Blog
About twenty years ago my older sister had an episode that almost took her life. Through this, she discovered she had a genetic disorder they called Long QT. At the time it was very foreign to doctors as well as us. Nobody had ever heard of this. Matter of fact, the...
