Blog

Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!

To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.

Underneath

by Kiersten Rock-Torcivia Who is this girl? What is on her chest? On her chest, just below her left collarbone, is a black oval outline shadowed...

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Lauren’s ARVC Story

Nine months ago, on March 14, 2024 (National Pi Day, to be exact), something happened to me that didn’t make sense No matter how many highly...

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Tana’s SCA Story

“Telling you all of that is like telling someone’s else's story,” Tana said as I interviewed her on a bright, sunny fall day in October. Nine months...

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Mental Health and ARVC

Written by Kiersten Rock-Torcivia   "Mental health isn’t static; just like anything in life, there are highs and lows." Mental Health. It's a...

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Jadale’s CPVT & SCA Story

When Jadale was nine, he experienced his very first symptom of CPVT – a terrifying episode in which he lost consciousness in the rain and had to...

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Kaveri’s Short QT Syndrome Story

Kaveri didn’t have any indication that something was wrong with her son’s heart – until he experienced Sudden Cardiac Arrest (SCA) during a band gig...

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John’s CPVT Story

John is a happy, compassionate, and bright 10-year-old boy who loves science and learning how things work – and who almost lost his life because of...

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Martin’s LQTS Story

Martin – also known as Fast Heart Mart – was diagnosed with Long QT Syndrome (LQTS) at the age of 17 after six years of searching for answers. Now,...

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Katherine’s SCA & HCM Story

Katherine could tell that something was wrong with her heart – but doctors kept telling her that she was a perfectly healthy eighth grader. After...

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