Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
ARVC Awareness: Jeff’s Story
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? Jeff & his son at a baseball game I was diagnosed...
ARVC: Stories from the Community
Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of...
Brugada Syndrome Awareness: Sandy Cowin
Sandy and her son, Jackson SADS billboard placed by Sandy in Binghamton, NY Sandy Cowin is on a mission to raise awareness about Brugada Syndrome –...
Melanie’s ARVC Story
My story would probably best be described as a roller coaster, with lots of ups and downs. I grew up between two brothers, and we did everything...
Brian Peck
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He...
Chaunté’s LQTS Story
Chaunté and her daughter Kadence I'm a mom to three girls. When my second daughter, Kadence, was six months old, I took her to a pediatrician for a...
CPR & AED Awareness: Isaiah’s Story
Can you tell me a little bit about your heart journey – from diagnosis to where your family is today? On January 12, 2022, my son, Isaiah Bangoura,...
CPR & AED Awareness: Linton’s Story
Linton Beck had never had a symptom before his cardiac arrest on April 20, 2022. Linton, 16, was in chemistry class at Station Camp High School in...
Get to Know Evan, Volunteer for the Canadian SADS Foundation
Evan Krueger is a third-year human biology student at the University of Toronto. A year and a half ago, he was diagnosed with Brugada Syndrome and...
ARVC Awareness: Jen’s Story
Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptoms years before my event. I did a...
ARVC Awareness: Christy’s Story
In June 2023, the SADS Foundation brought the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug Development...
Brian Peck
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He...