Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Spotlight: Jaren
Name: Jaren BergAge: 10Which SADS condition do you have? LQTS Type 1 When were you diagnosed? November 2017 at age 9 How are you treated? Nadolol...
SADS Spotlight: Alison
Alison and her husband after competing in the 2018 USAT Duathlon National Championship! Name: Alison HegeAge: 30Which SADS condition do you...
SADS Spotlight: Chevy
Chevy with his sister Zoiey Name: Chevy Mathis Age: 10Which SADS condition do you have? CPVT When were you diagnosed? February 2017 after a...
SADS Spotlight: John and Carter
Carter (left), mom Katie, and John (right) Name: John and Carter Cox (Twins) Age: 3Which SADS condition do you have? Long QT type 2 When were...
Our LQTS Story
We first contacted SADS when my middle child was 8 years old and had several “episodes” that looked like seizures. We had no idea what the...
Through Love and Faith: An Interview with Rebecca Hernandez
The Hernandez family March is Brain Injury Awareness Month. Brain injuries can result from many causes. One of these causes is anoxia (lack of...
SADS Spotlight: Danielle and Alanna
Name: Danielle and Alanna Mundondo Age: 34 and 4 Which SADS condition do you have? Long QT Syndrome Type 2 When were you diagnosed? Age 19 via...
Selfies With AEDs
Do you notice AEDs in your community? If you’re at work, out shopping, working out or participating in your everyday activities - could you find the...
“I Had To Do Something”: An Interview with Rare Disease Advocate Courtney Waller
February 28th is Rare Disease Day. The main objective is to raise awareness amongst the general public and decision-makers about rare diseases and...
Heart Hero: Terry
Terry Bishop was nominated as a Heart Hero by his wife, Whitney. He lives with Brugada Syndrome....
SADS Spotlight: Waylon
Name: WaylonAge: 10 monthsWhich SADS condition do you have? Long QT Type 1 When were you diagnosed? 4 months old How are you treated? Beta blocker...
SADS Spotlight: Tasha
Name: Tasha Kempton Age: 43 Which SADS condition do you have? LQT2 When were you diagnosed? 1992 How are you treated? Beta Blocker & ICD...