Blog
Our SADS blog is your hub for stories, interactive forums, and posts about awareness topics like research, pregnancy, and exercise. Want to share your SADS journey? Reach out to [email protected] to connect!
To read memorial stories of those we’ve lost to SADS, visit our In Loving Memory wall.
SADS Exercise/Movement Challenge Questionnaire
Questionnaire: What exercise did you accomplish this week? How did you feel? Leave your answers below! Be on the lookout for a SADS water bottle...
Heart Month Stories: Ishani’s LQTS Story
A normal summer day at the pool turned into a rare genetic heart condition diagnosis for thirteen year old Ishani. After feeling dizzy, Ishani...
SADS Exercise Challenge Sign Up
Welcome to The SADS Exercise/Movement Challenge! We are encouraging the SADS community to incorporate healthy movement throughout the month of...
SADS Exercise/Movement Challenge Forum
For the final week, we want you to choose the activity. Go on a bike ride, do some jumping jacks, or just turn on some music and dance, etc. And...
David’s ARVC Story
In November of 2021, six weeks after hiking Mount Whitney – the highest mountain in the contiguous United States – David fainted while taking his...
ARVC Awareness: Nathan’s Story
During a typical morning run in August of 2022, Nathan became lightheaded and had to lie down on the sidewalk. After he was found by two other...
From Cycling to Dog Agility: Kathy’s ARVC Journey
For many years before her diagnosis, Kathy’s heart beat in a strange rhythm – but she always chalked it up to being a competitive athlete. After...
#ThisisACM: Cassidy’s ACM Story
At just seventeen years old, Cassidy – a competitive athlete – was diagnosed with ACM (arrhythmogenic cardiomyopathy). She experienced her first...
Annie Lucatuorto
Annie Lucatuorto, daughter of Cathleen and board member Anthony, had a cardiac arrest while swimming at a YMCA when she was ten years old. After...
Brittan’s CPVT Story
While she was in high school, Brittan started to experience shortness of breath during athletics. Her doctor told her that she just needed to eat...
Meredyth’s LQTS Story
When Meredyth was twelve, she was diagnosed with asthma because she was often short of breath when playing sports. At the time, she played lacrosse...
Completing an Ironman with Brugada Syndrome: Mark’s Story
Mark’s completed six half-Ironman and two Olympic triathlon events across the globe in the last two years, and completed a full Ironman this past...