by kymera_editor | May 24, 2022 | Brugada Syndrome, ICD, Raising Awareness
Evan Krueger is a third-year human biology student at the University of Toronto. A year and a half ago, he was diagnosed with Brugada Syndrome and had an S-ICD placed. He got involved with the Canadian SADS Foundation soon after, and is now a volunteer who manages...
by kymera_editor | Apr 26, 2022 | Awareness, Brugada Syndrome, Parenting, SADS Kids
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s daughter, who was having cardiac symptoms. The doctors didn’t know what was going on, so they did genetic testing, and found out...
by kymera_editor | Mar 10, 2022 | Brugada Syndrome, Genetic Testing, Grief and Loss, Raising Awareness
Sandy and her son JacksonSandy’s dad and her son Jackson This Heart Month, volunteer Sandy Cowin made a huge impact through sharing her story with her local news station, Spectrum News 1, which broadcast her story and the SADS warning signs across the state of...
by kymera_editor | Apr 23, 2020 | Brugada Syndrome, SADS Spotlight, Uncategorized
Name: Justin Price Age: 4 years old Which SADS condition do you have? Brugada Syndrome When were you diagnosed? He was diagnosed one week after his first birthday (April 2016) after going into cardiac arrest at home. How are you treated? He was treated with an ICD,...
by kymera_editor | Apr 20, 2020 | Awareness, Brugada Syndrome, Genetic Testing, Schools, Sudden Cardiac Arrest, Uncategorized
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he fainted. We couldn’t tell if the kids were making it up & playing a joke on dad while I was at work. The next...
by kymera_editor | Apr 20, 2020 | Brugada Syndrome, Uncategorized
Name: Tenier Sims Age: 43 Which SADS condition do you have? Brugada Syndrome When were you diagnosed? October 2018 How are you treated? Currently being monitored How/when were you diagnosed? I was diagnosed when I became so fatigued that I couldn’t walk, so I went to...
