Cardiogenetic testing is standard of care for people with SADS conditions.
Implement cardiogenetic testing for individuals with SADS conditions or a family history of SADS. Elevate your practice and offer personalized, life-saving care for your patients.
Understanding Cardiogenetic Testing
Discover who should test and explore the benefits. Learn more about common misconceptions surrounding genetic testing and genetic discrimination.
After the Test: Next Steps
Understand how to interpret results and tailor patient care. Find resources for help with cascade testing for patients and their families.
Health History Saves Lives
Family Health History Month encourages families to share their medical history with relatives who may also be affected. Here, we spotlight stories of families in which genetic testing saved lives.
When Cascade Screening Reveals New Information
Genevie’s children have LQTS, which was only discovered through genetic testing. Her youngest daughter had more severe symptoms of LQTS, and went through an extensive testing panel – which is how her husband learned he had LQTS Type 5.
A Rare Cardiac Mutation — and A Life Saved
Madison is one of only 60 people worldwide diagnosed with a rare PPA2 cardiac mutation. She received genetic testing at Johns Hopkins because of symptoms her younger brother experienced before his death.
How Genetic Counseling Impacts Patients
“It was such a positive experience – she helped me understand what the medical terms associated with my genetic variant meant for me now, and what my genetics might mean for me in the future.”
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Show Your Support
Your support — no matter the size — powers life-saving research and medical education, patient advocacy, and awareness for SADS conditions.
There are many ways to support our community, including becoming a sustainer as a monthly donor, making a one-time gift, hosting an online or in-person fundraiser, donating to one of our honorary funds, or with your own creative idea!
Learn more about how you can save lives and strengthen our community through the various ways to give.