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  • SADS Conditions
    • Acquired LQTS
    • Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C)
    • Brugada Syndrome
    • Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT)
    • Long QT Syndrome (LQTS)
    • Short QT Syndrome (SQTS)
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SCA Survivor: The Collinson Family’s Story

by kymera_editor | Oct 18, 2021 | CPR, CPVT, ICD, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest

Jacob Collinson Jill Collinson Can you tell me a little bit about your family’s SADS journey? We had no family history – this came out of the blue. Jake started having events at 7. The first one he had was when he was dropped off at a skating rink for a birthday...

Everyday Superhero: Walter Dusseldorp

by kymera_editor | Oct 12, 2021 | Awareness, CPR, CPVT, SCA Awareness, Sudden Cardiac Arrest

Can you tell me a little bit about your CPR save? It’s one of those things that happens in the career of a paramedic and that will stick with you for life. I’ve seen a lot and I’ve done a lot, but responding to Gregory’s house is something that...

Advancing Care: Kennedy Cooper

by kymera_editor | Jul 9, 2021 | Awareness, CPVT, Grief and Loss, ICD, SCA Survivor

Could you talk a little bit about your family’s SADS journey? My story begins on June 11, 2001, when my mom had a Sudden Cardiac Arrest. And unfortunately, she passed away. When you’re six years old, and you lose a parent unexpectedly, there are so many unanswered...

SADS Spotlight: Karly Gonthier

by kymera_editor | Sep 22, 2020 | CPVT, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise

Name: Karly Gonthier  Age: 13 Which SADS condition do you have? CPVT When were you diagnosed? June, 2019 How are you treated? (Beta blocker, ICD, etc.) Beta Blocker, calcium channel blocker Personal Questions How/when were you diagnosed? The day after my 13th...

SADS Spotlight: Cian Bennett

by kymera_editor | Jul 23, 2020 | Awareness, CPVT, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise

Name:  Cian Bennett Age:  13 Diagnosis:  Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Age of Diagnosis: 13 What led to your diagnosis?  I had a fainting episode at home and my pediatrician sent me to a cardiologist.  My first...

Lily’s Story of CPVT

by kymera_editor | Apr 23, 2020 | Advocacy, CPVT, Parenting, Sudden Cardiac Arrest

Lily and her sister Charlotte My daughter has CPVT. My daughter, Lily, suffered sudden cardiac arrest while swimming in our pool on July 8, 2012. She went without oxygen for an estimated 11 minutes. Lily continues her recovery from the resulting anoxic brain...
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