Name: Bella Alvarez
Which SADS condition do you have? CPVT
When were you diagnosed? December 2018
How are you treated? Beta Blocker (Metoprolol)
How/when were you diagnosed?
I was diagnosed through genetic testing after my Father was diagnosed with CPVT and I lost my Aunt and Uncle at 15 and 16 years of age due to the undiagnosed CPVT.
What has been the biggest challenge you’ve faced in living with your diagnosis?
The biggest challenge was taking medication and getting used to my Mom never leaving a cheer practice.
What is one positive thing that has come out of your diagnosis?
I am able to share my experience with others and teach others about the benefits of learning CPR/AED
What encouragement or advice would you give someone who has just been diagnosed with your condition?
Don’t be scared, at first you will feel bad but then you will learn to be ok.
What does your day-to-day life look like?
I started middle school this year and go to cheer practice three times a week for three hours each day, take my heart medicine every night at 9
What are your favorite hobbies and activities?
I love to dance with my friends and I love to fly in cheer
How has the SADS Foundation been helpful to you?
SADS foundation made me feel better about being different and reminds me I am not alone there are others just like me!