Live Like Frankie 

Frankie left his earthly body at ten years old on September 12, 2019, but we continue to feel his giving energy fuel us to help families like ours. It took 4 years and our oldest child having a cardiac arrest to learn our family has CPVT. With the help of SADS, we received a full education of our condition. We learned that SADS funds research, awareness, family support, and medical education. Today, SADS is helping us ensure Frankie’s memory and spirit of giving live on. [Click for full story]

This year, SADS annual No Ball Campaign includes individual memorial fundraising pages, starting with Frankie’s where you can purchase Live Like Frankie hats and make additional donations to help families like ours. 

Click here to purchase a Live Like Frankie Hat