Support the PFDD

On Tuesday June 11, we will be meeting to inform the US Food and Drug Administration other key stakeholders (including medical product developers, health care providers, and federal partners) about the urgent need for new and improved treatments for Long QT Syndrome and CPVT in an Externally-Led Patient Focused Drug Development meeting (EL-PFDD).

A very generous SADS donor just put up a $50,000 match if we can raise the remaining $50,000 in expenses to produce an important upcoming meeting with the Food and Drug Administration. That means that your impact will be DOUBLED!

This is a once-in-a-lifetime opportunity to support this special meeting to inform the FDA and help us advance research for all our SADS families. We’re depending on families like yours to help us meet the match – this is your chance to contribute! All of your contributions go directly to changing your life and the lives of those you love and care about.

If you wish to pre-register without making a donation, click here