SADS Awareness Month
Help us spread awareness about SADS conditions!
This September, we’re celebrating SADS Awareness Month – an opportunity for us to bring awareness to SADS conditions, and help our friends, family, and communities learn more about them. Each week, we will be focusing on one of the SADS conditions, and providing you with our newest stories, research, and resources for that condition.
We have a lot of easy ways to participate throughout the month! Check out some ways you can be a part of this campaign below. And make sure to sign up for our eNews to get a special email with tons of resources for your cardiac condition, plus the latest about research and new clinical trials.
Spread the Word About Genetic Testing
Be an advocate for SADS families in your area by helping educate your local healthcare professionals about genetic testing! Learn more and order materials here.
Follow along with our SADS Awareness Month Calendar.
Complete two quick actions each week to spread awareness & get to know the SADS community. View our calendar here
Start a Facebook Fundraiser for SADS.
Help us raise funds to support our growing community! You can learn more here
Order an awareness shirt.
Wear awareness on your sleeve! We have shirts for specific conditions, or just for general SADS awareness, with colors & sizes for your whole family. Wear awareness on your sleeve! We have shirts for specific conditions, or just for general SADS awareness, with colors & sizes for your whole family.
Share your story.
Let us know what you wish others knew about your condition! You can share your story by filling out the form below. Your story may be featured on social media or on our YouTube Channel!
Download our new fact sheets to help explain YOUR condition
We’ve just developed brand-new fact sheets for SADS conditions that you can give to family, friends, and your community. It explains what your condition is, what the treatment is, and answers to common questions you may hear from family and friends when explaining your diagnosis.
We’ll be updating them throughout the month; you can download the completed fact sheets below.
Long QT Fact Sheet
ARVC/ARVC Fact Sheet
CPVT Fact Sheet
Brugada Syndrome Fact Sheet
ARVC Awareness Week is generously sponsored by Tenaya Therapeutics.