by Erinsads | Jan 10, 2024 | Advocacy, Awards, Awareness, Blog, Connecting with others, Long QT Syndrome
Annie Lucatuorto, daughter of Cathleen and board member Anthony, had a cardiac arrest while swimming at a YMCA when she was ten years old. After genetic testing revealed LQTS, he got in touch with the SADS Foundation – and had other family members tested, resulting...
by kymera_editor | Jul 12, 2022 | Awareness, Long QT Syndrome, Parenting
Chaunté and her daughter Kadence I’m a mom to three girls. When my second daughter, Kadence, was six months old, I took her to a pediatrician for a routine well-child check and immunizations. And when he was doing the initial examination, he noticed that her...
by kymera_editor | Apr 21, 2022 | Long QT Syndrome, Parenting, SADS Spotlight
Stephanie and one of her daughters (who also has LQTS) Back in 1992, I was diagnosed with a condition called Long QT Heart Syndrome. Doctors discovered it through medication interactions, which caused a cardiac arrest. Doctors didn’t know as much about the condition...
by kymera_editor | Apr 15, 2022 | Long QT Syndrome, Raising Awareness, Support Groups
I was lucky – I was diagnosed at birth. The doctors knew something was off with my heart rhythm when I was in utero, but the technology back then wasn’t advanced enough to know more than that. I was in distress when I was born, and I was born with heart block along...
by kymera_editor | Apr 4, 2022 | Awareness, Long QT Syndrome, Parenting
When I was 14, I starting blacking out and have seizure-like activity, and we saw different specialists, but they couldn’t figure out what was causing the seizures. They did a bunch of different tests – MRIs and CAT scans – which all came back normal. Because of my...
by kymera_editor | Mar 25, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Parenting
“We celebrate Graeme every day in our family by persevering and sticking together, against all odds.” Deby’s Story I was 28 when I was diagnosed with LQTS in 1989. In 2000, we learned from my Electrophysiologist, Dr. Blair Halperin that we could do genetic testing for...
