by kymera_editor | May 24, 2022 | Brugada Syndrome, ICD, Raising Awareness
Evan Krueger is a third-year human biology student at the University of Toronto. A year and a half ago, he was diagnosed with Brugada Syndrome and had an S-ICD placed. He got involved with the Canadian SADS Foundation soon after, and is now a volunteer who manages...
by kymera_editor | Apr 15, 2022 | Long QT Syndrome, Raising Awareness, Support Groups
I was lucky – I was diagnosed at birth. The doctors knew something was off with my heart rhythm when I was in utero, but the technology back then wasn’t advanced enough to know more than that. I was in distress when I was born, and I was born with heart block along...
by kymera_editor | Mar 10, 2022 | Brugada Syndrome, Genetic Testing, Grief and Loss, Raising Awareness
Sandy and her son JacksonSandy’s dad and her son Jackson This Heart Month, volunteer Sandy Cowin made a huge impact through sharing her story with her local news station, Spectrum News 1, which broadcast her story and the SADS warning signs across the state of...
by kymera_editor | Mar 7, 2022 | Fundraising, Grief and Loss, Raising Awareness, Raising Funds, Sudden Cardiac Arrest
Brian was a junior and on the dean’s honor list at the University of Wisconsin-Madison, studying biomedical engineering and computer science. He truly loved his college experience and formed an amazing second family away from home. We are comforted knowing he was the...
by kymera_editor | Mar 2, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Raising Awareness, Raising Funds
Lyla, Sonny Jude’s sister, at the pancake breakfast My son, Sonny Jude, went unresponsive (stopped breathing and his precious heart stopped beating) at six months old. His babysitter saw this and performed CPR and resuscitated him. It was then we...
by kymera_editor | Nov 29, 2021 | AEDs, ARVC, Raising Awareness, SADS Kids, Uncategorized
Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...
