International Pediatric CPVT Registry Research

Do you have a child or teen (ages 5-18 years old) with CPVT who would like to participate in research?

The International Pediatric CPVT Registry based at the BC Children’s Hospital in Vancouver has two new CPVT studies on physical activity in CPVT and ICD quality of life in CPVT.

The physical activity study aims to determine whether there is a relationship between physical activity levels and abnormal heart rhythms in young people with CPVT, and the ICD quality of life study is studying how living with an ICD might affect young people with CPVT.