SADS Externally-led Patient Focused Informational Webinar

June, 20, 2023

Thank you for registering for the EL-PFDD on June 20, 2023! We will email you the livestream link two weeks prior to the meeting. Your input is critical to informing the FDA about what it’s like to live with ARVC, and we are extremely grateful for your participation – YOU are making a difference for the whole community. In the meantime, we will send you email updates about the EL-PFDD. 

  • The SADS Foundation is hosting a community webinar to share how YOU can get involved in the upcoming Externally-Led Patient Focused Drug Development (EL-PFDD) meeting!  You can learn more about the webinar here.
  • We are collecting testimonials from our ARVC community. You can share your personal story, the struggles your family and loved ones living with ARVC have faced, or anything else you want others to consider. Share your testimonial here.

Please feel free to email with any questions. To read more about our Privacy Policy at the SADS Foundation, click here.

Watch the informational webinar recording

Share your testimonial