Share Your Story about the EL-PFDD

On Tuesday June 11, we held a meeting to inform the FDA about the urgent need for new and improved treatments for Long QT Syndrome and CPVT in an Externally-Led Patient Focused Drug Development meeting (EL-PFDD). 

Submit your LQTS and CPVT stories and comments below for our EL-PFDD meeting.

These stories and comments are collected by SADS staff, and may be shared on various outlets.