Thank You For Registering

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Hi! Thank you for registering to join our meeting to inform the FDA on LQTS and CPVT. About a week before the EL-PFDD – which is on June 11, 2024 – you will be receiving an email with instructions on how to join us virtually to share your experiences. Make sure to check your spam folder – just in case!

In the meantime, if you have further questions, feel free to email us or call our or you can call or text our SADS Hotline at (801) 948-0654. Thank you for joining this critical meeting – we look forward to seeing you virtually on June 11!

Download this calendar hold so you can remember to attend (virtually, via our website) and tell your story to inform the FDA and other key stakeholders (including medical product developers, health care providers, and federal partners)!

Please help support this meeting by donating here – even $10 makes a difference towards meeting our $140,000 goal!

To read more about our Privacy Policy at the SADS Foundation (in other words – how we handle your data), click here.

-The SADS Foundation