ARVC/ACM: Johns Hopkins ARVC Registry

Open to New Participants

Run By: Johns Hopkins ARVC Program

Learn more about how we work with the Johns Hopkins ARVC Program here.

The Registry is the heart of the Johns Hopkins ARVC program and from which all of our research projects originate. This means eligibility for future clinical trials, including gene therapy, will require enrollment in our registry. 

You do not need to be a patient followed at Johns Hopkins or need to travel to Johns Hopkins to participate in our registry. Both children and adults either diagnosed with ARVC or a family member of someone diagnosed with ARVC are eligible to participate.

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