Mental Health in Pediatric Patients with Channelopathies
Mental Health and Quality of Life Assessment in Pediatric Patients with Channelopathies
Researchers at the University of Michigan want to learn more about how the diagnosis of Long QT Syndrome, Brugada Syndrome and CPVT affects the lives of kids, teens and young adults between 10-20 years old.
Much of what researchers know about mental health and quality of life when living with a SADS condition is based on adult experiences. Your participation will help inform researchers about the unique experiences adolescents and young adults face when living with a channelopathy.
What is involved for people who join?
You will be asked to complete a survey to evaluate the impact your SADS condition has on you psychologically, on your quality of life, and about your access to mental health care.