Mental Health in Pediatric Patients with Channelopathies

Mental Health and Quality of Life Assessment in Pediatric Patients with Channelopathies

Researchers at the University of Michigan want to learn more about how the diagnosis of Long QT Syndrome, Brugada Syndrome and CPVT affects the lives of kids, teens and young adults between 10-20 years old.

Much of what researchers know about mental health and quality of life when living with a SADS condition is based on adult experiences. Your participation will help inform researchers about the unique experiences adolescents and young adults face when living with a channelopathy.

What is involved for people who join?

You will be asked to complete a survey to evaluate the impact your SADS condition has on you psychologically, on your quality of life, and about your access to mental health care.

Mental Health and Quality of Life Assessment in Pediatric Patients with Channelopathies

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Name*

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Affected Family Member

Name of affected

First Last

Relationship to affected

Date of Birth

Year affected was diagnosed:

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Yes

I am interested in future research*

Yes

I would like to get news and updates from SADS Foundation*

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Mental Health in Pediatric Patients with Channelopathies

Mental Health and Quality of Life Assessment in Pediatric Patients with Channelopathies

What is involved for people who join?

Mental Health and Quality of Life Assessment in Pediatric Patients with Channelopathies

Affected Family Member

Research

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