New York University Study on Reproductive Decision-Making
Quick Facts
📌 Studying: family planning for those with genetic heart rhythm conditions
📌 Status: Now Enrolling
Have a question? We can help you understand research options, requirements, and genetic testing – without any expectation that you enroll in this study. Reach out to learn about research and next steps from the SADS Foundation’s clinical trial support team.
About This Research Study
Researchers at NYU are interested in learning more about how a genetic heart rhythm condition in you or your family is affecting your family planning choices. Your participation will help researchers understand the unique challenges and needs of heart families when it comes to family planning. It will also help researchers improve counseling for families in the future.
What is involved for people who join?
You will be asked to complete an anonymous survey about your conditions and your family planning choices. This is a one-time only survey, without follow up. The survey should take 10 minutes to complete. You can answer all questions or skip any questions you want.