Help us learn more about the needs of the ARVC community – and make a difference by sharing your story!
As research into ARVC and potential new therapies progresses, we’re looking to learn more about the unique stories and experiences of the ARVC community. By sharing your story, you help us (and the researchers who work with us) understand what’s most important to the ARVC community.

Your story may be included in our communications with other families. By checking the permission box at the bottom of this form, you give us permission to use your information in these settings. For more information about our privacy policy, click here

For any questions, please contact