by kymera_editor | Apr 26, 2022 | Awareness, Brugada Syndrome, Parenting, SADS Kids
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s daughter, who was having cardiac symptoms. The doctors didn’t know what was going on, so they did genetic testing, and found out...
by kymera_editor | Feb 23, 2022 | Advocacy, Long QT Syndrome, Parenting, SADS Kids, Sports/Exercise
Alexis and her mother, Meredith, at Mayo ClinicAlexis competing this FebruaryAlexis with coach Lee Eves MitchellAlexis Loveless Can you tell me a little bit about your SADS journey – from diagnosis, to your dance competition this past Friday? Alexis: I was shadowing a...
by kymera_editor | Nov 29, 2021 | AEDs, ARVC, Raising Awareness, SADS Kids, Uncategorized
Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...
by kymera_editor | Sep 22, 2020 | CPVT, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Karly Gonthier Age: 13 Which SADS condition do you have? CPVT When were you diagnosed? June, 2019 How are you treated? (Beta blocker, ICD, etc.) Beta Blocker, calcium channel blocker Personal Questions How/when were you diagnosed? The day after my 13th...
by kymera_editor | Jul 10, 2020 | Awareness, CPR, Long QT Syndrome, SADS Kids, SADS Spotlight, SADSConnect, Sports/Exercise
Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to the ER to get IV fluids. The doctor did an ECG to see if she could give me some medicine to stop puking and noticed an...
