SADS Newsroom
A Mother’s Fight for Awareness: WFAA Dallas
Part 1 of Community Engagement Coordinator Jennifer Berko’s story of her sons, Frankie and Sammy, and her fight for CPVT awareness.
Texas & Me: SADS Foundation
Jennifer Berko, Community Engagement Coordinator, talks about her story and the SADS Foundation with Texas & Me.
Patient-Focused Drug Development for Arrhythmogenic Right Ventricular Cardiomyopathy/Dysplasia Heralds a New Chapter in Patient Advocacy
The SADS Foundation hosted a virtual externally-led patient-focused drug development meeting (EL-PFDD) with the US FDA on June 20, 2023. The meeting was designed to educate the FDA and other key stakeholders, including patient advocates, drug developers, and health care providers on the patient’s perspective about the challenges of
Cardiogenomic testing is a must for certain patients, so why is adoption by cardiologists so low?
“We talk to families every day who have had a disease in their family, but it didn’t pass to them. But we also hear from people who have had cardiac events, and they wish someone had done genetic testing so they could have been treated appropriately,” Ms. Lara said.
A Twin’s Tale: The Critical Role of Genetic Testing and Knowing Your Family Health History in Managing Heart Health
In 2016, Alesha started experiencing symptoms like severe nausea and syncope (fainting) – but didn’t know what could be causing them. That August, she went to the hospital for an unrelated medical procedure. She was woken up from anesthesia by her doctor, who asked, urgently, if she had any
Recent Press Releases
Rejuvenate Bio Announces Preclinical Data for Gene Therapy Candidate RJB-0402 for the Treatment of Arrhythmogenic Cardiomyopathy
CPR and AEDs Save Lives: Statement on Christian Eriksen’s Return to Play
SADS agrees: all kids should be screened for possibility of sudden cardiac arrest
SADS Foundation Announces the Appointment of Four New Board of Trustees Members
Sudden Arrhythmia Death Syndromes Foundation (SADS) educates FDA on living with ARVC/D through externally-led patient-focused drug development meeting
Dr. Sami Viskin, SADS Scientific Advisor, Named Editor-in-Chief of Heart Rhythm
Andy Golden Memorial Fund – generously established by his wife and daughter through a $50,000 endowment to the SADS Foundation – continues a legacy of support and research for rare heart conditions
Your stories – in action
Share your story with your local community! When you become a Media Outreach Volunteer, you’ll get updates on the best times to pitch your story to the media – and all the materials you need to make an impact.
Many of the stories you see in our news feed were made possible by volunteers who were willing to pitch their story to their local media station.
When you sign up to become a media volunteer, we’ll let you know when there’s a great opportunity to pitch your story to local news stations, and provide you with a sample pitch email, fact sheet, and SADS staff support if a station picks up your story – including working with the reporter, and finding a medical expert for the press to interview.
Information for the media
If you’re a reporter working on a news story about SADS conditions, Sudden Cardiac Arrest, CPR and AED awareness, or another related topic – please get in contact with us. We can provide medical experts and families to interview and background information for your story.
Below, you will find general information about SADS conditions and our press releases.