SADS Newsroom

CPR: Every Moment Counts

Alex doesn’t remember much about what happened on the life-altering day he was at a playground with his mother, when he was 4 years old. “We were at a children’s park in San Jose [California], I was playing at the top of a slide, and I suddenly collapsed,” he

How Genetic Counseling Helped a Patient with Rare Heart Condition

Recent high-profile cases of sudden cardiac arrest are bringing attention to rare forms of hereditary heart disease this National Heart Month. However, you don’t need to be famous to learn and advocate for heart health. Take it from Julia – who was diagnosed in 2020 with ARVC.

Navigating a Family History of Long QT Syndrome with Genetic Counseling

Sometimes you can’t tell that you have a sudden arrythmia death syndrome (SADS) condition until you undergo genetic testing. Genevie was diagnosed with Long QT Syndrome in 1997 – but because genetic testing wasn’t commercially available, she didn’t know her genetic mutation until 2009

Cardiac Arrest (SCA) Awareness: Courtney’s Story

Courtney West didn’t know that she had a potentially fatal heart condition until her brother, Jacob, died suddenly during a football practice from sudden cardiac arrest (SCA) in 2013. Jacob was a multisport athlete who’d had several school physicals, none of which showed any problems. “We were completely blindsided,”

Recent Press Releases

Your stories – in action

Share your story with your local community! When you become a Media Outreach Volunteer, you’ll get updates on the best times to pitch your story to the media – and all the materials you need to make an impact.

Many of the stories you see in our news feed were made possible by volunteers who were willing to pitch their story to their local media station.

When you sign up to become a media volunteer, we’ll let you know when there’s a great opportunity to pitch your story to local news stations, and provide you with a sample pitch email, fact sheet, and SADS staff support if a station picks up your story – including working with the reporter, and finding a medical expert for the press to interview.

Information for the media

If you’re a reporter working on a news story about SADS conditions, Sudden Cardiac Arrest, CPR and AED awareness, or another related topic – please get in contact with us. We can provide medical experts and families to interview and background information for your story. 

Below, you will find general information about SADS conditions and our press releases.