The SADS Foundation hosted a virtual externally-led patient-focused drug development meeting (EL-PFDD) with the US FDA on June 20, 2023. The meeting was designed to educate the FDA and other key stakeholders, including patient advocates, drug developers, and health care providers on the patient’s perspective about the challenges of
Recent Press Releases
Your stories – in action
Share your story with your local community! When you become a Media Outreach Volunteer, you’ll get updates on the best times to pitch your story to the media – and all the materials you need to make an impact.
Many of the stories you see in our news feed were made possible by volunteers who were willing to pitch their story to their local media station.
When you sign up to become a media volunteer, we’ll let you know when there’s a great opportunity to pitch your story to local news stations, and provide you with a sample pitch email, fact sheet, and SADS staff support if a station picks up your story – including working with the reporter, and finding a medical expert for the press to interview.
Information for the media
If you’re a reporter working on a news story about SADS conditions, Sudden Cardiac Arrest, CPR and AED awareness, or another related topic – please get in contact with us. We can provide medical experts and families to interview and background information for your story.
Below, you will find general information about SADS conditions and our press releases.