Name: Kerri Dyer

Age: 38 years

Which SADS condition do you have? ARVC

When were you diagnosed? 2014

How are you treated? (Beta blocker, ICD, etc.) 2 different beta blockers and ICD fitted

How/when were you diagnosed? 

Collapsed at home with pulse of 276 bpm, taken to hospital where my heart stopped, then started in normal rhythm. Had 3 MRI scans and they diagnosed it as ARVC.

What has been the biggest challenge you’ve faced in living with your diagnosis? 

Not being able to run around, play football, etc. with my son and acting like everything is fine when really I feel ill.

What encouragement or advice would you give someone who has just been diagnosed with your condition? 

Don’t let the condition rule your life. Everyone has different severities of the illness but live to the best of your abilities. But also don’t push yourself to do more than what you can, remember to take breaks when possible.

What does your day-to-day life look like?

  Like a normal mum of an active 8 year old!

What are your favorite hobbies and activities? 

I love swimming and singing.

How has the SADS Foundation been helpful to you?

They have helped me understand my condition and have also shown me that I’m not alone.