Sports & Exercise
Physical activity is an important part of staying physically and mentally healthy, but we know that for many of our SADS families exercise and sports participation brings up many questions and concerns about how to participate safely.
We know that for many people with a SADS condition it’s safe to return to some form of physical activity. It’s important to work together with your doctor to make sure you understand your individual risk and that you are appropriately treated for your SADS condition, so that you can find a way to safely participate in physical activity that will allow you to live and thrive with your condition.
Long QT Syndrome and Return to Play
In one study of 130 LQTS competitive athletes, only 1 had an LQTS-triggered event while playing.
Shared Decision: New Guidelines for Athletes – 2021
Editorial: Toward a Long and Happy Life of a Patient With Genetic Heart Disease
From Toward a Long and Happy Life of a Patient With Genetic Heart Disease– Etheridge and Saarel editorial on Return to Play:
These data reassure us that optimally treated athletes with a comprehensive “return-to-play” plan can compete with a low rate of adverse events.”
“Patients live long lives despite their genetic arrhythmia diagnoses. Data like those provided by Tobert et al. help us understand that once evaluated, appropriately monitored, and treated, most can return to play and hopefully live long and happy lives.”
Return to Play
In 1,287 athlete-years of follow-up, 15 athletes with LQTS had at least 1 nonlethal breakthrough cardiac event (BCE), translating to an RTP-BCE rate of 1.16 per 100 athlete-years.
Athletes with LQTS can safely RTP with a low risk of BCEs, after:
1) completing a comprehensive evaluation with risk stratification;
2) establishing a LQTS genotype- and phenotype – tailored treatment program; and
3) implementing a proper athlete- specific RTP plan.
What Can Parents Do?
Sports and Exercise Resources
- Experiences of athletes with arrhythmogenic cardiac conditions in returning to play
- Vigorous Exercise in Patients With Hypertrophic Cardiomyopathy
- Physical Activity in Individuals With the Long QT Syndrome Baseline Data From the Lifestyle and Exercise in Long QT Study
- Information for Coaches and Risk Assessment