David’s ARVC Story

In November of 2021, six weeks after hiking Mount Whitney – the highest mountain in the contiguous United States – David fainted while taking his dog, Honey, for a nighttime walk. “My entire life, I was very active,” says David, who played baseball in college and...

CPVT Awareness: Karly’s Story

Can you tell me a little bit about your family’s SADS journey? My daughter, Karly, had her first Sudden Cardiac Arrest at the age of ten. She was a competitive soccer player and dancer at the time, and was at a soccer tournament up at Lake Tahoe. In between games, she...

Returning to Play: Ella and Dawn’s Story

Dawn didn’t know she had Long QT Syndrome until her oldest child, Ella, was diagnosed while doctors were looking for a heart murmur. At the time, Dawn’s family was living in South Dakota; a cardiologist visited the town they lived in once every three months. Her...

AED Drawing: Mary’s Story

In October, the SADS Foundation held an opportunity drawing for an AED, which was generously donated by American AED, part of the One Beat Medical & Training Family. This drawing raised over $2,600 for us here at SADS – thanks to everyone who entered! Learn more...

Kiersten’s Story: Making a Difference

Can you tell me a little bit about your SADS journey? I’m a junior in high school. I used to be figure skater until I was diagnosed with ARVC, and that’s how I found out that I had it – I was skating when I had some arrhythmias. After a long process of being...