ARVC Awareness: Matthew’s Story

In October of 2022, Matthew was taking a dinner break during a World of Dance rehearsal in New York City when he experienced Sudden Cardiac Arrest (SCA). It was his first symptom of an underlying heart condition. A friend started CPR, and Matthew was shocked twice...

Off to College

by Deirdre R. Let her fly, they say. I want to. She will be fine, they say. I want to believe that too. I wake up sometimes in a panic and know which thoughts are breaking through the surface, forcing me awake. Will we make it in time? Will her device work as it...

Living with ARVC | Julia’s Story

Julia | Living with ARVC       Santa Rosa, CA | Born January 1992 “This is something I’ve had to deal with every single day for more than two years. I have had to mitigate. Life has really had to change. I came out of this a completely different person.” The Sonoma...

ARVC Awareness: Katherine’s Story

“This whole experience completely changed my perspective on life. I think now I am easier on myself, I lean on the people I love a little more, and I don’t stress about the trivial things anymore. I take it one day at a time, although living with ARVC is hard.”...