John’s CPVT Story

John is a happy, compassionate, and bright 10-year-old boy who loves science and learning how things work – and who almost lost his life because of an undiagnosed heart condition called CPVT. “John’s very first symptom of a heart issue, as it is for many families with...

Summer’s SCA Survival Story

In May of 2022, Summer went into Sudden Cardiac Arrest (SCA) on her front porch. Thanks to her husband’s quick actions, she survived. After her diagnosis of Long QT Syndrome (LQTS) Type 1, Summer is on a mission to spread awareness about CPR – and “invisible”...

CPVT Awareness: Madalyn’s Story

On December 21, 2022 I was playing tag with my sisters and neighbors when I collapsed in my neighbor’s yard. Thankfully my friends ran for help after my youngest sister found me unresponsive and blue in the face. 911 was called and I was taken to the hospital where I...

CPR and AED Awareness: Matt’s Story

Matt Clark is alive today because of the quick actions of his coworkers – at 40,000 feet in the air. Matt, who was an airline pilot at the time, had no previous medical issues or symptoms of a heart condition before his Sudden Cardiac Arrest (SCA) in 2020. “There was...

ARVC Awareness: Dawn’s Story

Can you tell me a little bit about your SADS journey?  I’ve always been very healthy and athletic, always involved in running or walking. When I was young, I ran track, cross country and participated in a lot of 5K’s and a few Tough Mudders as well as a half...