by Erinsads | Mar 1, 2023 | Blog
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are now? Our journey is about my son, Logan. He passed away a little over three years ago on October 31, 2019. Logan had just turned 19 and was off at college. He...
by Erinsads | Feb 8, 2023 | Blog
In November 2022, we asked people to share their stories as they took our genetic testing survey – and we are so grateful for everyone who talked with us, wrote down their story, or left us a voicemail! Here are some of the stories shared by the SADS community....
by Erinsads | Jan 6, 2023 | Blog
Can you tell me a little bit about your SADS journey? I’ve always fainted for no reason, maybe once or twice a year. It was either unprovoked or something simple such as tripping, getting hurt, or even being stung by a bee and I would faint. Growing up, there...
by Erinsads | Dec 9, 2022 | Blog
In 2016, Babett’s daughter, Joriale, passed away from LQTS. This year, her book about her family’s journey was published – helping Babett spread awareness in honor of her daughter. In January of 2016, my daughter, Joriale, passed away from Long QT Syndrome. Nine...
by Erinsads | Nov 16, 2022 | Blog
Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? In 1991, I was a single dad living in Houston. I was a minister with a great church, a daughter at Baylor University, a 15-year-old son and his 13-year-old brother. My...
