Susan’s Heart Failure and Transplant Story

Susan’s first symptom of a heart problem was a Sudden Cardiac Arrest in her driveway as she was getting ready to leave for work in 2015. It took over three years to figure out what caused her Sudden Cardiac Arrest. “I was in a coma for four days after my SCA,” says...

ARVC: Stories from the EL-PFDD

In June 2023, the SADS Foundation is bringing the ARVC patient community together for a first ever FDA Externally-Led Patient-Focused Drug Development Meeting (EL-PFDD). This meeting gives the FDA and other key stakeholders — including researchers, biopharma...

ARVC Awareness: Tracy’s Story

Can you tell me a little bit about your ARVC journey – from diagnosis to where you are today? I had my first symptom of ARVC at 16 years old when I passed out. My mom called the doctor and he said I was a young, healthy, athletic woman who must have had low blood...