ARVC Awareness: Regina’s Story

Can you tell me little bit about your ARVC journey – from your diagnosis to where you are today? I was 34 years old when I started to have symptoms like palpitations and nearly passing out while exercising. I had multiple tests and saw multiple physicians. I was...

ARVC: Stories from the Community

Lizzie Name: Lizzie How and when were you diagnosed? I was diagnosed with ARVC in the middle of a career of ultramarathon running at the age of 31. I started to develop shortness of breath and weakness in my legs during my training runs, and not long after that I...

No more doom, no more gloom

If you’ve recently come across this diagnosis, whether in yourself or a family member, chances are things are looking a little dark right now. And that is 100% ok. I’m here to say that it’s not all doom and gloom. In fact, you may find that the...