Fundraiser Spotlight: Stephanie

Can you tell me about your family’s SADS journey, from diagnosis to where you are today? When I was 30 years old, I had a Sudden Cardiac Arrest. I had no prior knowledge that I had a heart condition. I was six weeks postpartum at the time from my fourth child, and my...

SCA Awareness Month: Eliott’s Story

When Eliott was just nine years old, he had a Sudden Cardiac Arrest (SCA) at an early-morning soccer game. Thanks to the quick action of a pediatric ICU doctor who happened to be watching the game, Eliott received life-saving CPR – and was diagnosed, after a full day...

Tom’s CPVT Story

Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in my family to have this condition that we know of. I call myself the “mutant” – the one that first had the gene. As a kid,...

Hailey & Shannon’s Wolff-Parkinson White Syndrome Story

This September, Hailey competed in the national and world amateur divisions for aerial silks. “Doing aerial silks always makes me feel free, like I’m flying,” says Hailey. Aerial silks is a combination of contemporary dance and acrobatics, performed while suspended in...