by SADS Foundation | Jul 1, 2025 | Blog
In the fall of 2013, Steve and his wife traded swim practice drop-off and pick-up duty for long nights under the glaring fluorescent lights of a pediatric CVICU. Kate, their 15-year-old daughter, had just been hospitalized for a syncopal (fainting) episode during a...
by SADS Foundation | Jun 23, 2025 | Blog
by Danielle Mundondo It’s been over five years since I last wrote. That piece was called Holding My Breath. Today, I come to you with its natural follow-up: Letting Go. Alanna is doing well—thankfully, she hasn’t experienced any cardiac events that we’re aware...
by SADS Foundation | Feb 13, 2025 | Blog
Running your first marathon while raising money for the SADS Foundation is no easy feat; neither is figuring out how to tell your 9-year-old she has Brugada Syndrome, so Camila “Mila” did something inventive. She used the marathon as a vehicle to tell her daughter,...
by SADS Foundation | May 23, 2024 | Blog
Adeline was diagnosed the day after birth with Long QT Syndrome Type 2. Now, Adeline is one of ten Children’s Miracle Network National Champions, and is sharing her LQTS story on a Cheerios box in Costco throughout the month of May. “Adeline was born a healthy,...
by Erinsads | Sep 6, 2023 | Blog
About twenty years ago my older sister had an episode that almost took her life. Through this, she discovered she had a genetic disorder they called Long QT. At the time it was very foreign to doctors as well as us. Nobody had ever heard of this. Matter of fact, the...
