Paul’s ARVC Story

In October 2014, Paul was at the gym when he suddenly collapsed. His doctors thought the cause was dehydration or stress – until he collapsed again while running just six months later. Paul was originally diagnosed with CPVT after a panel of heart tests –...

Brugada Awareness: Julia’s Story

Can you tell me a little bit about your SADS journey?  I was diagnosed with Brugada Syndrome in 2019 and subsequently had an S-ICD implanted. My journey to my diagnosis, especially in regards to genetic testing is somewhat unique given that I am adopted and have no...