Your Questions About Exercise & Sports Participation

In January 2024, we’re dedicating an entire month to giving you the latest updates on sports and exercise participation for SADS conditions. This includes the newest guidelines for all of our SADS conditions (including ARVC), and several chances to get your specific...

CPVT Awareness: Joey’s Story

Can you tell me a little more about your journey? My first symptoms of any cardiac issues started in August, 2011 while I was on a jog while living in St. Louis. Because I was a competitive athlete my entire life, I thought that I was just out of shape now that I’d...

Returning to Play: Ella and Dawn’s Story

Dawn didn’t know she had Long QT Syndrome until her oldest child, Ella, was diagnosed while doctors were looking for a heart murmur. At the time, Dawn’s family was living in South Dakota; a cardiologist visited the town they lived in once every three months. Her...