by Erinsads | Nov 1, 2022 | Blog
Can you tell me little bit about your ARVC journey – from your diagnosis to where you are today? I was 34 years old when I started to have symptoms like palpitations and nearly passing out while exercising. I had multiple tests and saw multiple physicians. I was...
by Erinsads | Oct 3, 2022 | Blog
Tom and his daughter Meg Can you tell me a little bit about your SADS journey – from diagnosis to where your family is today? I’m the first one in my family to have this condition that we know of. I call myself the “mutant” – the one that first had the gene. As a kid,...
by Erinsads | Sep 23, 2022 | Blog
This September, Hailey competed in the national and world amateur divisions for aerial silks. “Doing aerial silks always makes me feel free, like I’m flying,” says Hailey. Aerial silks is a combination of contemporary dance and acrobatics, performed while suspended in...
by Erinsads | May 6, 2022 | Blog
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis, at 13, Joelle got an ICD to help regulate the “electrical chaos” in her heart. Joelle had been a competitive figure...
by Erinsads | May 4, 2021 | Blog
This Mother’s Day, we want to give a huge shoutout to all of our SADS moms! Whether you have a SADS condition, or are caring for a child with a cardiac arrhythmia, we want to thank you for being the heart of our families. Being a mom in a SADS family comes with...