by kymera_editor | Jun 15, 2018 | Connecting with others, CPVT, HCM, ICD, Long QT Syndrome, Research, Sports/Exercise, Sudden Cardiac Arrest, Timothy Syndrome, Uncategorized
Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay,...
by kymera_editor | Apr 29, 2017 | CPVT, Uncategorized
If you haven’t already I want you to take a look at that photo. It’s special. Not because of what’s there, but because of what isn’t. Honestly this is a once in a lifetime photo, because the event in this photo changed my life forever. Have you...
by kymera_editor | Mar 8, 2017 | CPVT
The other day, while watching a wheelchair basketball game, my friend was talking about how one of the players ended up paralyzed. When she finished telling the story she said “I don’t know what I would do in that situation. Would I keep going or just give...
