Lost a Loved One
Losing someone you love suddenly and unexpectedly might make you feel like you’ll never return to your normal life again. Everything seems wrong, and you’re left wondering if you’ll ever feel better. If you’re here because you’ve experienced the tragic loss of a loved one, please know how sorry we are. We know that you’re trying to navigate through something for which nobody is prepared. Even though the journey is long, we’re here to be a partner to you as you move through the stages of grief and begin to heal.
Please feel free to reach out to us – we can help in the following ways:
After the sudden, unexplained death of a loved one, it’s important to know more about what happened to them to protect the rest of your family. SADS conditions are genetic, and can affect more than one member of your family, so it’s important to talk to your family about your loved one’s cardiac condition. Giving your family the gift of knowledge can help save lives.
The First Steps We Recommend
Contact the Medical Examiner ASAP to find out if they have saved the appropriate tissue and blood samples.
Get the parents, siblings, and children (if applicable) of your loved one screened for SADS conditions by a specialist (a cardiac electrophysiologist).
If none of the living family members are identified as having a SADS condition you may consider genetic testing and DNA Banking to preserve a sample of DNA for future testing.
Genetic Testing Companies
Ambry Genetics
http://www.ambrygen.com/
Client Services
949-900-5500
Blueprint Genetics
Customer Support
650-452-9340
Gene Dx
http://www.genedx.com/
301-519-2100
Invitae
http://www.invitae.com/
Testing Inquiries
415-374-7782
Prevention Genetics
(also has a DNA banking program)
https://www.preventiongenetics.com/index.php
715-387-048
Resources
Post Mortem Genetic Testing