Supporting Families.
Saving Lives.

Our mission is to save the lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities.

The Warning Signs.

Family history of unexpected, unexplained sudden death under age 40.

Fainting or seizure during exercise, excitement, or startle.

Consistent or unusual chest pain and/or shortness of breath during exercise.

Patient and Family Support Services.

The patient and family support program provides access to information, resources, research and support to patients’ and families’ who are dealing with genetic conditions that cause sudden cardiac death in the young or who have lost a loved one to sudden unexplained death.

Patients & Families


Healthcare Professionals




Welcome to the SADS Foundation.

Established on December 12, 1991 by Dr. Michael Vincent, The SADS Foundation is a community of families, medical professionals, and supporters saving lives and advancing care for people with heart arrhythmia conditions that can lead to sudden death.

Support the EL-PFDD

This is a once in a lifetime opportunity to inform the FDA, researchers, and biopharma companies about the experience of living with LQTS and CPVT; it’s focused on the voices of those who have been so profoundly affected by these conditions – meaning, YOU and your family!


Gene Therapy Awareness

This month, at the SADS Foundation, we’ll be spending the whole month educating YOU about the basics of gene therapy – so that when clinical trials do open for these conditions, you’ll have the information you need to make a personal decision on whether to participate.

Drugs to Avoid Webinar with LQTS

Thursday, April 25 Dr. Will Heise, a Scientific Review Committee member of conducted a Q&A about what supplements or other drugs to avoid. Watch the recording now.

Get Involved in Research

This is an exciting time for those with SADS conditions because there is so much new research happening and a greater push for new therapies!

Sharing Your Stories

SADS conditions are rare, but you are not alone. Here, you will find a community of understanding, support and guidance from others who are navigating life with a SADS condition. We welcome you to browse others’ stories and to contribute your own.

SADS Channel Stories

Members of the SADS community share their perspectives and experiences living with or parenting a child with a SADS condition.

In Memory

Families share memories and legacies of their children, spouses, and loved ones who died from a heart arrhythmia condition.

In Honor

Here we honor the people in our lives who inspire us while living and thriving with a SADS condition or cardiomyopathy.

Cute little daughter and happy mother join hands in shape of heart as concept of mom and child love care support

Get Involved

Connect with families who share a similar experience, give back, or help drive change around medical research, legislation, or awareness-building. Join us in making an impact!

Stay Connected

Join our email list to get the latest SADS related news and updates delivered to your inbox.

Show Your Support

Your support — no matter the size — powers life-saving research and medical education, patient advocacy, and awareness for SADS conditions.

There are many ways to support our community, including becoming a sustainer as a monthly donor, making a one-time gift, hosting an online or in-person fundraiser, donating to one of our honorary funds, or with your own creative idea!

Learn more about how you can save lives and strengthen our community through the various ways to give.