Get Involved

SADS is so much more than an organization. SADS is a community! We’re your community.

Whether you’re looking to connect with other families who share a similar experience, want to give back, or are looking to get involved in driving change around medical research, legislation, or awareness-building—you’ve come to the right place!

Ways you can get involved:

Ways to Give

There are numerous ways to show your support. Your gift (no matter the size) powers life-saving research and medical education, patient advocacy, and awareness for SADS conditions.

Learn More

Annual Conference

Learn and connect at our annual international conference. Hear from leading experts, get questions to your most common questions about living with SADS, and forge connections with experts and families who get it.

Learn More

Drive Awareness

Save lives by sharing information about warning signs for SADS conditions, CPR and AED facts, your own family health history, and more. We’ve built the campaigns, have everything you will need, and will walk you through step-by-step.

Learn More


Step in and make a difference. Whether you’re a whiz on social media, find fulfillment in telling your unique story, love to throw a party for a good cause, or are a natural networker—we’d love to have you on the team!

Learn more


Drive positive change for SADS families, including expanding access to care, reducing discrimination, promoting patient-centric policies and more. Lend your voice when it matters most.

Learn more

Participate in Research

You could be part of a breakthrough in the treatment or diagnosis of SADS conditions. Share your experiences and information with a researcher in heart arrhythmias, genetics, mental health, and other subjects.

Learn More

Connect with the SADS Community

You’re not alone. Join other SADS adults, kids, teens, and families for fun events, networking, learning opportunities, mutual support and friendship.

Coming Soon