Johns Hopkins ARVC (ACM) Registry
Quick Facts
📌 Studying: arrhythmogenic cardiomyopathy; data insights pulled from the registry create multiple research projects
📌 Condition: anyone with ACM (also known as ARVC or ARVD)
📌 Ages: all ages
📌 Status: Now Enrolling
Have a question? We can help you understand research options, requirements, and genetic testing – without any expectation that you enroll in this study. Reach out to learn about research and next steps from the SADS Foundation’s clinical trial support team.
About This Research Study
The Johns Hopkins ARVC Registry is the center of all research efforts at Johns Hopkins focused on arrhythmogenic right ventricular cardiomyopathy (ARVC). By joining the registry, you help researchers learn more about ARVC and contribute to the development of new treatments – including future clinical trials such as gene therapy.
You don’t have to be a patient at Johns Hopkins or travel there to take part. Both adults and children who have been diagnosed with ARVC — as well as family members of someone with ARVC — are welcome to join.
Your participation helps move ARVC research forward and brings us closer to better treatments for everyone affected.
Full eligibility criteria will be evaluated by the researcher to determine if an individual is the right candidate for this study.
Johns Hopkins ARVC (ACM) Registry
After filling out the form below, you’ll have a chance to discuss this research study - and any questions you might have - directly with the staff at the SADS Foundation. Then a member of the staff will connect you one-on-one with the research coordinator.