geneTIC Study on Trauma-Informed Genetics Care
Now enrolling parents and caregivers of a child under 18 with an inherited arrhythmia or other genetic condition.
Quick Facts
About this study
The geneTIC study – short for “Genetics care that is Trauma-Informed” – is led by Dr. Kelsey Sala-Hamrick at Eastern Michigan University. The team wants to hear directly from parents and caregivers about what genetics care has been like for your family: the parts that helped, the parts that were hard, and what could be done differently. Findings will be used to inform how future genetic counselors and clinicians are trained.
What are the basic eligibility criteria?
This study is for families who meet these basic criteria:
- Role: Parent or caregiver of a child under age 18
- Diagnosis: Child has a genetic condition (inherited arrhythmias qualify)
- Language: Able to speak and read English
- Location: Resides in the United States
Full eligibility will be confirmed by the research team.
Have a question? We can help you understand research options, requirements, and genetic testing – without expectation that you enroll in any particular study.
Current trial sites
This study is virtual, and open to anyone within the United States.
I’m interested in participating. How do I get started?
Ready to share your experience? Visit redcap.link/f5rf9wo2 to get started.
Questions? Contact Dr. Kelsey Sala-Hamrick at [email protected] or (734) 787-3383.