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Privacy Policy

This is the Sudden Arrhythmia Death Syndromes (SADS) Foundation Internet Privacy Notice, which discloses the privacy practices for www.stopsads.org.

Our Commitment to You

The Sudden Arrhythmia Death Syndromes (SADS) Foundation values your privacy and recognizes the sensitivity of your personal information. We have carefully crafted our privacy policy to address any concerns you might have, and to assure you that your personal information, if provided to us, will be treated carefully and appropriately.

Information Collection and Use

The Sudden Arrhythmia Death Syndromes (SADS) Foundation is the sole owner of the information collected on this site. We will not sell, share, or rent this information without your permission, or in ways other than those outlined in this statement. The Foundation collects information from visitors at several different points on our site. Personal information provided by you will be used to improve our web site and provide you with a more personalized experience.

Information that identifies you as a specific individual will not be disclosed to others without your permission, unless the disclosure is necessary to provide services that you have requested. We will not ask your permission to collect or use aggregate information about web site visitors or users of our products or services, since aggregate information does not identify you as a specific individual. In addition to these general provisions, we collect and use personal information in the following ways:

 

Choice/Opt-out

We may from time to time send you information about our programs, products and services via e-mail messages. If you no longer wish to receive our e-mail newsletters or promotional messages, you may opt-out of receiving these communications by following the “unsubscribe” instructions in the e-mail message.

 

SMS Privacy Policy

We may also disclose Personal Data and other information as follows:

  • Third Parties that Help Provide the Messaging Service: We will not share your opt-in to an SMS short code campaign with a third party for purposes unrelated to supporting you in connection with that campaign. We may share your Personal Data with third parties that help us provide the messaging service, including, but not limited to, platform providers, phone companies, and other vendors who assist us in the delivery of text messages.
  • Additional Disclosures: Affiliates: We may disclose the Personal Data to our affiliates or subsidiaries; however, if we do so, their use and disclosure of your Personal Data will be subject to this Policy. All the above categories exclude text messaging originator opt-in data and consent; this information will not be shared with any third parties.

 

 

Links

The Sudden Arrhythmia Death Syndromes (SADS) Foundation web site contains links to other sites. The Sudden Arrhythmia Death Syndromes (SADS) Foundation is not responsible for the privacy practices of such sites. We encourage you to be aware when you leave our site and to read the privacy statements of every web site that collects personally identifiable information. This privacy notice applies solely to information collected on our web site.
Security of Your Information

We will take every precaution to protect your personal information. All personal information collected on individuals will be kept confidential and in a secure environment. Access to personal information will be restricted to only those personnel with a legitimate business purpose. Servers used to store personally identifiable information will be kept in a secure environment.

Changes in Our Privacy Policy

Any changes to our Privacy Policy will be incorporated here so that you are always aware of the information we collect, the ways we use it, and any circumstances under which we disclose it. We may also contact you by e-mail to inform you of significant changes.

How to Contact Us

We invite your comments and questions about our web site, your experience with our site and services, and our Privacy Policy. You can reach us via e-mail or you can also contact us at 801-272-3023.