Tyson Downs

My nephew passed away at age of 18, to a hereditary gene MYH7, my family has been going through genetic testing and have had amazing support from SADS , my nephew was a hockey player for Waterloo Siskins, Golfer, and lacrosse player with the Owen sound North Stars, we were unaware of this gene until he passed suddenly at home, he leaves behind his parents and older brother, our family now help make other family’s aware by sharing our story.