SADS Adjunct Scientific Meeting Recording
July, 20, 2023
AGENDA
EL-PFDD Adjunct Scientific Meeting
July 20, 2023
Opening Remarks – Genevie Echols, SADS Foundation
EL-PFDD Summary: What’s Important to ARVC Patients & Families Larry Bauer
Integrating the Patient Voice into Drug Development – Meeting Moderator, James Valentine, JD
Opportunities for Patient-Centered Treatment Approaches in ARVC – Hugh Calkins, MD
Landscape Analysis of Tools to Evaluate What’s Important to ARVC Patients – Sam Sears, PhD
Discussion: Setting a Patient-Focused Research Agenda for Drug Development (60 min)
- Hugh Calkins, MD
- Mario Delmar, MD, PhD
- Brittany Murray, MS, GCG
- Sam Sears, PhD
- Wojciech Zareba, MD, PhD
Key Take-aways – Michael Ackerman, MD, PhD
Our Supporters
Our supporters are helping us to invite families from around the globe to participate
Our Sponsors
These generous supporters have made this meeting possible…On behalf of the SADS Foundation, thank you!
