LAMIN Registry for LMNA
Quick Facts
📌 Studying: people with LMNA gene mutations to learn what factors influence how the condition appears and progresses.
📌 Condition: LMNA gene mutations
📌 Status: Now Enrolling
Have a question? We can help you understand research options, requirements, and genetic testing – without any expectation that you enroll in this study. Reach out to learn about research and next steps from the SADS Foundation’s clinical trial support team.
About This Research Study
The LAMIN Registry is a North American study that connects research teams in the U.S., Canada, and Europe through the PRIORITY Network, funded by the Leducq Foundation. Together, they’re studying people who have changes (variants or mutations) in the LMNA gene — a gene that can cause certain inherited heart conditions.
Researchers are working to understand why LMNA-related heart conditions can look so different from person to person. Some people may have mild symptoms, while others develop more serious heart rhythm problems or cardiomyopathy.
By collecting information from participants around the world, the team hopes to identify the factors — genetic and otherwise — that influence how LMNA-related disease develops and progresses.
LAMIN Registry for LMNA
After filling out the form below, you’ll have a chance to discuss this research study - and any questions you might have - directly with the staff at the SADS Foundation. Then a member of the staff will connect you with the research coordinator.