Outcomes Registry for Cardiac Conditions in Athletes (ORCCA)
Quick facts
📌 Studying: The ORCCA study aims to monitor clinical outcomes in athletes diagnosed with cardiac conditions at risk for sudden death.
📌 Ages: 14 to 35
📌 Status: Now Enrolling
About this research study
The ORCCA Study is working to better understand how heart conditions affect athletes. Sudden cardiac arrest (SCA) is the leading cause of sudden death during sports and exercise, but doctors still have many questions about how these heart conditions develop and how to keep athletes safe.
This study follows athletes who have been diagnosed with a cardiac condition that increases their risk for SCA to learn more about their health, sports participation, and overall well-being over time.
Why This Study Matters
By collecting more complete, real-world information, researchers hope to:
- Improve care and safety for athletes with heart conditions
- Help doctors and families make informed decisions about safe sports participation
- Understand how screening programs help identify heart risks early
- Learn how these diagnoses affect mental health, quality of life, and physical activity
Your participation will help researchers and doctors create better, evidence-based guidelines for athletes with heart conditions – so they can stay healthy, active, and supported.
Have a question? We can help you understand research options, requirements, and genetic testing – without any expectation that you enroll in this study. Reach out to learn about research and next steps from the SADS Foundation’s clinical trial support team.Â
What are the basic eligibility criteria?
Any competitive (high school, collegiate, semi-professional, professional, elite, national) athlete aged 14 to <35 who has a cardiovascular diagnosis associated with sudden cardiac arrest or cardiac abnormality of uncertain significance. This also includes athletes that returned to sport, stopped, or were excluded from sport participation.
Full eligibility criteria will be evaluated by the researcher to determine if an individual is the right candidate for this study.Â
Outcomes Registry for Cardiac Conditions in Athletes (ORCCA)
After filling out the form below, you’ll have a chance to discuss this research study - and any questions you might have - directly with the staff at the SADS Foundation. Then a member of the staff will connect you one-on-one with the research coordinator.
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