The Warning Signs.
Family history of unexpected, unexplained sudden death under age 40.
Fainting or seizure during exercise, excitement, or startle.
Consistent or unusual chest pain and/or shortness of breath during exercise.
Welcome to the SADS Foundation.
Established on December 12, 1991 by Dr. Michael Vincent, The SADS Foundation is a community of families, medical professionals, and supporters saving lives and advancing care for people with heart arrhythmia conditions that can lead to sudden death.
Support the EL-PFDD
This is a once in a lifetime opportunity to inform the FDA, researchers, and biopharma companies about the experience of living with LQTS and CPVT; it’s focused on the voices of those who have been so profoundly affected by these conditions – meaning, YOU and your family!
Gene Therapy Webinar
Join us on April 16th for an opportunity to ask about PKP2-ACM (or ARVC) clinical trials
Drugs to Avoid Webinar
Thursday, April 25 Dr. Will Heise, a Scientific Review Committee member of Credible Meds.org will be conducting a Q&A about what supplements or other drugs to avoid.
Get Involved in Research
This is an exciting time for those with SADS conditions because there is so much new research happening and a greater push for new therapies!
Sharing Your Stories
SADS conditions are rare, but you are not alone. Here, you will find a community of understanding, support and guidance from others who are navigating life with a SADS condition. We welcome you to browse others’ stories and to contribute your own.
SADS Channel Stories
Members of the SADS community share their perspectives and experiences living with or parenting a child with a SADS condition.
In Memory
Families share memories and legacies of their children, spouses, and loved ones who died from a heart arrhythmia condition.
In Honor
Here we honor the people in our lives who inspire us while living and thriving with a SADS condition or cardiomyopathy.
Get Involved
Connect with families who share a similar experience, give back, or help drive change around medical research, legislation, or awareness-building. Join us in making an impact!
Stay Connected
Join our email list to get the latest SADS related news and updates delivered to your inbox.
Show Your Support
Your support — no matter the size — powers life-saving research and medical education, patient advocacy, and awareness for SADS conditions.
There are many ways to support our community, including becoming a sustainer as a monthly donor, making a one-time gift, hosting an online or in-person fundraiser, donating to one of our honorary funds, or with your own creative idea!
Learn more about how you can save lives and strengthen our community through the various ways to give.